On October 14th 2015 the first part of a patient study in which many RLS patients in Europe participated was presented in the European Parliament. The first part of the study, analysed by Professor Matilde Leonardi from Milan, Italy, was about "Stigma and neurological illness, the patient experience".
A total of 4847 patients took part in the study from a variety of illnesses: headache/migraine, MS, ME, epilepsy, poliomyelitis, ataxia, Huntington disease, and others. Out of the total number of questionnaires, no less than 1368 (28.2%!!) were from RLS patients. Once again a clear indication that RLS patients have a story to tell.
57% of all patients felt that they had experienced stigma at one stage or another, at work, socially, and generally speaking. Four diseases were dominant in this respect: RLS, MS, ME and headache.
Having these data presented in the European Parliament, with many members of the Parliament as well as people from science and industry, present, was important for RLS awareness.